Legal
Privacy Policy
Last Updated: August 2026
Welcome
Welcome to the Global Endometriosis Movement (GEM).
Your privacy matters to us.
We are committed to protecting your personal information and handling it responsibly, transparently, and securely.
This Privacy Policy explains what information we collect, why we collect it, how we use it, and the choices you have regarding your information.
1. Information We Collect
Depending on how you use the GEM website, we may collect:
Information you provide voluntarily
For example:
- Name
- Email address
- Country or region
- Organization (if applicable)
- Information submitted through Contact Us
- Patient stories submitted voluntarily
- Newsletter subscriptions
- Information submitted through Patient Registry
- Information submitted through Expert Registration
You are never required to provide more information than necessary for the service you choose to use.
2. How We Use Your Information
We use your information to:
- Respond to your inquiries
- Manage Patient Registry participation
- Review patient stories before publication
- Improve educational resources
- Improve website performance
- Send newsletters or updates (only if you subscribe)
- Maintain website security
- Better understand how GEM can serve the global community
We only collect information necessary to provide these services.
3. Patient Registry
Participation in the Patient Registry is completely voluntary.
Information collected through the registry may be used to:
- Better understand endometriosis worldwide
- Support education
- Support future research
- Improve patient resources
Whenever possible, research data will be de-identified before analysis.
4. Patient Stories
If you choose to share your story:
- You remain the owner of your story.
By submitting your story, you give GEM permission to:
- Review the submission
- Edit grammar or formatting
- Publish it on GEM platforms if approved
GEM reserves the right not to publish submissions.
You may request removal of your published story at any time by contacting us.
5. Expert Contributions
Experts who submit articles, perspectives, or educational materials remain responsible for the accuracy and originality of their content.
GEM may edit formatting and presentation but will not intentionally alter the author’s scientific opinions.
6. Data Security
We take reasonable administrative and technical measures to protect your information.
However, no website can guarantee absolute security.
We encourage users not to submit sensitive medical records or personal information unless specifically requested through secure channels.
7. Cookies
GEM uses cookies as described in our Cookie Policy.
Please refer to our Cookie Policy for more information.
8. Third-Party Services
Some parts of the website may use trusted third-party services, including:
- Website analytics
- Video hosting
- Email communication
- Interactive maps (future)
- Other technical services
These providers may have their own privacy policies.
9. Your Rights
Depending on your location, you may have the right to:
- Access your information
- Correct your information
- Delete your information
- Request a copy of your information
Requests may be submitted through the Contact page.
10. Children’s Privacy
GEM is not intended for children under the age required by applicable law to independently consent to data collection.
If information relating to a child is submitted, it should be done by a parent, guardian, or other legally authorized representative where required.
11. Changes to this Privacy Policy
As GEM grows, this Privacy Policy may be updated.
The latest version will always be available on this page.
12. Contact
If you have any questions regarding this Privacy Policy, please contact us through the Contact page on the GEM website.
GEM is committed to respecting applicable privacy laws in the regions where it operates and will continue to update its privacy practices as the platform grows internationally.